The pedsql multidimensional fatigue scale consists of 18 items forming parts of three subscales. Though numerous versions of the pedsql have been developed as measures of healthrelated quality of life in pediatric patient populations, the pedsql multidimensional fatigue scale is the first of. Pedsql officially distributed by mapi research trust. Confirmatory factor analysis demonstrated an acceptable to excellent model fit in scd. This could be considered as additional evidence to suggest that the pedsql multidimensional fatigue scale arabic version is a valid instrument. The purpose of this study was to examine the psychometric properties of the pedsql multidimensional fatigue scale, using selfreports of brazilian children, 8 to 18 years of age, and proxy reports. In this regard, an appropriate measurement method must be developed. Objective the pedsql pediatric quality of life inventory is a modular instrument designed to measure health related quality of life hrqol in children and adolescents ages 218 years.
The original american version demonstrated adequate reliability and validity 14, 9. The pedsql multidimensional fatigue scale is an 18 item measure that includes three scales that measure different aspects of fatigue. Pedsql multidimensional fatigue scale was designed. Pediatric quality of life inventory pedsql multidimensional. The pedsql has been shown to be related to other key constructs in pediatric healthcare such as access to needed care, healthcare barriers and quality of primary care. The pedsql pediatric quality of life inventory is a modular instrument designed to measure healthrelated quality of life hrqol and diseasespecific symptoms in children and adolescents ages 218. But people who have medical conditions like ms experience stronger feelings of fatigue more often and with greater impact than others. The maf was originally developed in rheumatoid arthritis but has also been tested in hiv, multiple sclerosis, coronary heart disease, cancer, pulmonary disease, postpartum women and healthy controls. Fatigue is a common symptom in children with polyarthritis and can be present even in the absence of active joint disease. Reference values for the pediatric quality of life inventory. Bibliographic references of the original questionnaire. Determining the longitudinal validity and meaningful. The questionnaire was selfadministered, but children aged 57 years have been assisted by the researcher.
The format, instructions, likert response scale, and scoring method are identical. Tables 3 and 4 display the oneway anovas comparing healthy children with children with type 1 and type 2 diabetes using the pedsql generic core scales for ages 818 years matched to the age range for patients with type 2 diabetes. Updated march 2014 page 1 of pediatric quality of life inventory pedsql scaling and scoring of the ppeeddiiaattrriicc qquuaalliittyy ooff lliiffee iinnvveennttoorryy. Reliability and validity of the chinese version of the pedsql.
However, insufficient instruments are available to conduct parallel assessment on fatigue in parents and children in china. Factorial invariance of hild scelfreport across english and spanish language groups in a hispanic population utilizing the pedsql 4. Patients and methods this crosssectional study included children between the ages of 2 and 18 years with cancer and no reasonable chance of cure at the hospital for sick children, toronto, ontario, canada. The pediatric quality of life inventory pedsql is officially distributed by mapi research trust. Among the main factors that affect patients quality of life, fatigue is a significant symptom experienced by children during treatment. Intercorrelations of the pedsql multidimensional fatigue scale with the pedsql generic core scales were predominantly in the large. Pedsql multidimensional fatigue scale scores were significantly worse with large effects sizes. Healthrelated quality of life was assessed using the pediatric quality of life inventory pedsql generic core scales, version 4.
The pedsql multidimensional fatigue scale in type 1. The pedsql multidimensional fatigue scale was designed as a child self. The pedsql multidimensional fatigue scale is an 18item selfreport scale that includes three subscales. Pedsql multidimensional fatigue scale higher scores lower problems 18 items in 3 subscales past month general fatigue sleeprest fatigue cognitive fatigue varniet al.
Consequently, the objective of this exploratory study was to assess fatigue in a heterogeneous sample of pediatric patients with short stature utilizing the pediatric quality of life inventory pedsql multidimensional fatigue scale. Pedsql tm multidimensional fatigue scale in sickle cell disease. May 2017 page 6 of 150 the parent report for toddlers ages 24 of the pedsqltm 4. The objective of the present study was to determine the feasibility, reliability, and validity of the pedsql multidimensional fatigue scale in pediatric obesity. General fatigue, cognitive fatigue, sleep fatigue, and total fatigue. The pedsql multidimensional fatigue scale in pediatric rheumatology. The pedsql multidimensional fatigue scale is a generic. This study was aimed to examine the feasibility, validity, and reliability of the italian pediatric quality of life inventory multidimensional fatigue scale pedsql mfs for adult inpatients with severe obesity.
The pedsql multidimensional fatigue scale is a generic symptomspecific instrument to measure fatigue across pediatric populations 410. Feasibility, reliability and validity in a university student population. Pedsql tm multidimensional fatigue scale in sickle cell. Fatigue, sleepwake disturbances, and quality of life in. Psychometric properties of the fatigue severity scalerasch analyses of individual responses in a norwegian stroke cohort. Sickle cell disease scd is an inherited chronic disease that is characterized by complications such as recurrent painful vasoocclusive events that require frequent hospitalizations and contribute to early mortality. Modified fatigue impact scale mfis fatigue is a feeling of physical tiredness and lack of energy that many people experience from time to time. The pedsql multidimensional fatigue scale was designed to measure fatigue in pediatric patients. Multidimensional fatigue and quality of life were measured weekly with modules from the pedsql measurement model, and sleep disturbances were measured with the general sleep disturbance scale. The pedsql in type 1 and type 2 diabetes diabetes care. Page 4 of 100 pedsql generic core scales and asthma symptoms scale in vulnerable children with asthma. Further validation of the fatigue symptom inventory. Fatigue, sleepwake disturbances, and quality of life in ado.
Pearson correlations, pairedtests, and repeated measures manova evaluated differences. The format, instructions, likert response scale, and scoring method are identical to the pedsql 4. Despite the high incidence, there has been no validated scale to evaluate fatigue in children with cancer in brazil. Pain, fatigue, and healthrelated quality of life in. This study measured fatigue, sleep disturbances, and quality of life in 20 adolescents over 1 month while they were receiving chemotherapy. The objective of the present study was to determine the feasibility, reliability, and validity of the pedsql multidimensional fatigue scale in pediatric. Jan 01, 2014 read pedsql multidimensional fatigue scale in sickle cell disease.
Feasibility, reliability, and validity, abstract background. Functioning scale and psychosocial health summary sum of items answered in the emotional, social, and school functioning scales divided by total number of items answered 5. Healthrelated quality of life in children with congenital. The pedsql multidimensional fatigue scale mfs was completed. Fatigue is a common symptom in pediatric health conditions and is associated with poorer hrqol 18. The primary objective was to compare the gastrointestinal gi symptoms and worry of pediatric patients with functional gi disorders fgids and organic gi diseases to healthy controls utilizing the pediatric quality of life inventory pedsql gastrointestinal symptoms and worry scales for patient selfreports ages 518 years and parent proxyreports for ages 218 years.
Pedsql multidimensional fatigue scale in sickle cell. Assessment of fatigue in pediatric patients with short. Respiratory muscle function in untreated xlinked myotubular myopathy xlmtm study start date. Apr 15, 2016 psychometric properties of the fatigue severity scale and the modified fatigue impact scale. If more than 50% of the items in the scale are missing, the scale scores. Please visit proqolideprovide for more information. Procedures eligible families received initial notification of the study by mail and were given the opportunity to refuse to be contacted about the study. Nov 20, 2007 the pedsql pediatric quality of life inventory is a modular instrument designed to measure healthrelated quality of life hrqol and diseasespecific symptoms in children and adolescents ages 218. We compared self and parentproxy ratings from 60 children with hearing loss chl and 43 children with normal hearing cnh. The pedsql multidimensional fatigue scale is a specific module of the pedsql. The pedsql pediatric quality of life inventory is a modular instrument designed to measure health.
The pedsql multidimensional fatigue scale was designed as a child selfreport and parent proxyreport generic symptomspecific instrument to measure fatigue in pediatric patients. Request pdf the pedsql multidimensional fatigue scale in pediatric rheumatology. Purpose to compare quality of life of children with cancer with no reasonable chance of cure reported by parents 6 months or fewer versus more than 6 months before death. Reliability and validity of the pedsql multidimensional fatigue scale in japan. Despite the high incidence, there has been no validated scale to evaluate fatigue in children with cancer in. Dec 24, 2010 read pedsql cognitive functioning scale in pediatric liver transplant recipients. The psychometric properties of an arabic version of the pedsql.
We anticipate that the pedsql gastrointestinal symptoms scales, in combination with the pedsql 4. In this crosssectional study of consecutive patients attending a specialized pediatric ms clinic, we administered the pedsql multidimensional fatigue scale, center for epidemiological studies depression scale, and godin leisuretime exercise questionnaire. Parent reports of quality of life for pediatric patients with. Since a sizeable number of pediatric patients prefer to remain with their pediatric providers after age 18, the objective of the present study was to determine the feasibility, reliability, and. The pedsql has demonstrated reliability, validity, sensitivity and responsiveness for child self report for ages 518 years and parent proxy report for ages 218 years. The multidimensional fatigue symptom inventory mfsi, is an 83item selfreport measure designed to assess the principal manifestations of fatigue. The pediatric quality of life inventory pedsql tm multidimensional fatigue scale was designed by varni and colleagues to measure fatigue in children. The pedsql multidimensional fatigue scale in young adults. Assessment of fatigue in pediatric patients with short stature utilizing the pedsql multidimensional fatigue scale article in children s health care 412 april 2012 with 56 reads. The recently developed 18item pedsql multidimensional fatigue scale was designed to measure fatigue in pediatric patients and comprises the general fatigue scale 6 items, sleeprest fatigue scale 6 items. The pedsql multidimensional fatigue scale demonstrated acceptable to excellent measurement properties in scd. Pedsql gastrointestinal symptoms scales and gastrointestinal. Assessment of fatigue in pediatric patients with short stature utilizing the pedsql multidimensional fatigue scale. Reliability and validity of the chinese version of the.
Sep, 20 pedsql multidimensional fatigue scale scores were significantly worse with large effects sizes. The standardized multidimensional assessment of fatigue has not been previously conducted in pediatric patients with short stature. May 2017 page 1 of 146 pediatric quality of life inventory pedsql scaling and scoring of the ppeeddiiaattrriicc qquuaalliittyy ooff lliiffee iinnvveennttoorryy. Following is a list of statements that describe the effects of. This instrument was developed by varni on the basis of the concept that diseasespecific symptoms are causal indicators of generic healthrelated quality of life hrqol. The pedsql multidimensional fatigue scale in pediatric obesity. Results on the basis of preacher and hayes mediation model 2004, fatigue functioned as a mediator between pain and overall hrqol on the basis of both self and.
The pedsql multidimensional fatigue scale pedsql mfs is commonly used to assess fatigue in pediatric patients. The recently developed 18item pedsql multidimensional fatigue scale was designed to measure fatigue in pediatric patients and comprises the general fatigue scale 6 items, sleeprest fatigue scale 6 items, and cognitive fatigue scale 6 items. Pediatric quality of life inventorytm pedsql tm 0100, 175, 250, 325, 40. Subjective fatigue was assessed using the pediatric quality of life inventory multidimensional fatigue scale pedsql mfs. Similar to the pedsql multidimensional generic core scale, items on the fatigue scale are reverse scored and linearly transformed to a 0 100 scale. The impact of fatigue on health related quality of life in. The pedsql multidimensional fatigue scale was designed as a generic symptomspecific instrument to measure fatigue in pediatric patients ages 218. Pedsql multidimensional fatigue scale in sickle cell disease. The pedsql multidimensional fatigue scale japanese version was used to evaluate fatigue in citrindeficient patients. The pedsql multidimensional fatigue scale in pediatric. Methods multidimensional fatigue and quality of life were measured weekly with modules from the pedsql measurement model, and sleep disturbances were measured with the general sleep disturbance scale.
Fatigue and quality of life in citrin deficiency during. The objective of the present study was to determine the feasibility, reliability, and validity of the pedsql multidimensional fatigue scale in type 1 diabetes. The pedsql multidimensional fatigue scale in young adults jstor. These scales were selected for this investigation since they measure the primary symptom domains identified by the omeract fibromyalgia syndrome workshop 4. The results demonstrate the relative severity of fatigue symptoms in pediatric patients with scd, indicating the potential clinical utility of multidimensional assessment of fatigue in patients with scd in clinical research and practice. For example, the pedsql asthma symptoms scale from the pedsql asthma module has been used as a standalone scale in treatment research, as has the pedsql cognitive functioning scale from the pedsql multidimensional fatigue scale. May 2017 page 6 of 146 the parent report for toddlers pages 24 of the peeddssqqllttmm 4400 nggeen eerriicc sccoorre ssccaallees is composed of 21 items comprising 4 dimensions. Reference values for the pediatric quality of life. Feasibility, validity, and reliability of the italian. Healthrelated quality of life, physical function, fatigue. The recently developed 18item pedsql multidimensional fatigue scale was designed to measure fatigue in pediatric patients and comprises the general fatigue scale 6 items, sleeprest fatigue scale.
Outcome measure pediatric quality of life initiative peds ql. The pedsql multidimensional fatigue scale pedsql mfs is widely used to rate fatigue in children living in englishspeaking countries. Subjective fatigue in children with hearing loss assessed. Updated march 2014 page 6 of pediatric quality of life inventory pedsql the parent report for toddlers ages 24 of the ppeeddssqqlltm 4400 ggeenn eerriicc ccoorree ssccaalless is composed of 21 items comprising 4 dimensions. Pedsql multidimensional fatigue scale pediatric quality of life inventory multidimensional fatigue scale. Pedsql multidimensional fatigue scale was designed as a generic. The aim of this study was to assess internal consistency and construct validity knowngroups validity and to provide dutch norm data for the dutch pediatric quality of life inventory multidimensional fatigue scale for young adults ages 1830 years. High validity and reliability of the pedsql multidimensional. Outcome measure pediatric quality of life initiative peds. Dec 01, 2004 objective the pedsql pediatric quality of life inventory is a modular instrument designed to measure health related quality of life hrqol in children and adolescents ages 218 years. For all scales except physical functioning and social functioning, children with type 1 diabetes reported. The pedsql tm multidimensional fatigue scale was distributed at day care facilities and schools in urban and suburban areas in the netherlands, between october 2009 and may 2010.